another tough day...

So today is another day and truth is its pretty much the same as the last....Daniel continues to battle whatever this is, he is still spiking temps and has diahorrea (al be it not quite as bad as the last few days) BUT im scared, not as a mum to a child with Leukemia but as a "liver mum" Daniels stomach is massive, his spleen and Liver have increased in size and his tummy is distended, to the point that its shiny and so stretched.....its really freaking me out, his Liver function is all over the place, his albumin is low and Bili is High and to me his liver is really struggling, thing is at this point he wouldnt qualify for a new organ and thats what scares the hell out of me.
Today a new thing happened, he is now on Oxygen, with his tummy being big its crushing his lungs and making his SATs drop to less than 90%....Im worried seriously worried.
I spoke to the doc today and he said since his Bili had come down since yesterday he considered him to be "in better shape", but im watching my little boy - so yellow his eyes have now turned yellow....and still having Morphine every 6 hours for the terrible cramps he keeps having. Im trying to hold onto the fact he is Amazing, still is, amoungst all this, no complaints, no "why me's", nothing, Daniel accepts that he is a sick child, accepts that he is in hospital, accepts all the drugs being pumped into his body.....me unfortunately im far less accepting.