Sunday, June 20, 2010

Its back - but never really went away :(

Its been a while since my last update and in that time Daniel had another round of Chemo. Suprisingly he was GREAT! right the way through and beyond he seemed to cope with it and take it all in his stride.....i was so worried about how his body would handle a 4th round and yet he managed wonderfully....we have been in and out alot, due to high temps and infections, our last stint (2 weeks) ended on Friday and we are home for the weekend.
Now, i say home for now because Dr Caswell talked to Michael on Friday and gave us the news we had been dredding - that despite 4 rounds of intensive Chemo Daniels Cancer has returned and is again at 60-70% in his body taking over most of his healthy cells. To say we are shocked/devestated is an understatement - no real signs or symptoms that this had happened and the only real clue where the "unexplained fevers" he kept having that where put down to a mystery infection. The doctor explained - its not good for the cancer to still be there when chemo is still happening it means he has "resistant disease" the cells have mutated and started to fight the chemo, making nigh on impossible to cure with chemo alone.
7 months ago when this nightmare started we where told he would not be able to have a bone marrow transplant because of the risk to his liver. Now that statement has been blown out of the water and the drs have decided to go with another round of chemo and hopefully (if we reach that point) a bone marrow transplant. The main issue with all of this is his liver, as things stand today his liver function remarkably has returned to normal but this is serious chemo, stuff they have avoided purely because they "expect" it to cause liver problems with "healthy people". The truth is the doctor said there is only a slim chance Daniel will actually make it through the chemo, then they will see if its had any effect on the leukemic cells, if it has, they may need to do more or if its totally gone they will proceed to transplant.
We are numb.

10 Comments:

Anonymous matt and marie said...

Liz we are so gutted for you all, theres nothing else we can say except we love you all so very much xx Matt and Marie

7:19 pm  
Blogger Colby Kids said...

Praying for all of you. I'm so sorry the news isn't better.

9:09 pm  
Blogger Marisa said...

MANY MANY PRAYERS LIZ!!

2:10 am  
Blogger Unknown said...

Liz. We are praying like mad. There isn't a day that goes by that I don't lift Daniel and your family in prayers. He is such a fighter but I am sorry that he is having to fight so much.

3:13 am  
Blogger Stacy said...

Liz - I am so sorry. Praying for you guys.

3:37 am  
Blogger Erica said...

Daniel and your whole family are in my prayers.

Eden's Momma

6:09 am  
Anonymous Sara from LF said...

Liz...I don't know what to say except that I am praying for Daniel, you, and your entire family.

2:18 pm  
Anonymous Anonymous said...

Liz,
I hope you know I'm always praying for you and Daniel. I'm so so sorry! I keep up on all you have going on but sometimes I have no words, only tears! I wish I lived closer so I could sit with you, bring you goodies, and just plain be there for you. I can't imagine how scared and worried you have to be. Hang in there. I won't stop praying!

Michelle (Weston's Mom on LF)

3:20 pm  
Anonymous Dorothy from LF said...

I'm so sorry to hear this news. Thinking of you, hoping & hoping for Daniel and you all.

7:46 pm  
Blogger Cheryl said...

I am so very sorry. I will be praying for all of you.

2:36 pm  

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