so far so.......
Good!
Lets start with the positives - Daniel has now clocked up 5 rounds of chemo, the 5th of which was 2 weeks ago and he survived it (which in itself is an achievement!) not only that but he is doing well i wont use my word "amazing" because this round has been tough and as i write he has a bug again in his central line, this time he is alot more tired and appears yellow/grey in colour. The diahorrea continues into its 6th month as does the vommiting and in himself he has good days and bad. Today has been a good day and despite his blood pressure dropping and constantly needing blood and platelets he has managed a little stint in hospital school where he painted a "bear mask" and had a small go on their computer. Mostly he is just watching DVD's and TV and lying in bed recouperating. Michael mentioned to the docs how this seemed to be taking it toll on him and his reply "consider this round Major surgery" in comparrision to the other chemo this is tough stuff.
He is sceduled for another biopsy tomorrow, which they are expecting his bone marrow to be "empty" as it is yet to regnerate after chemo, if this is the case they will repeat it next week, if it has any cells (good or bad) they will crack on with another round of chemo next week in order to prepare him for transplant. Originally they did say the last one was "it" but his little body has again proved them wrong and they are pushing on with more. Although this is good news, it is, at the same time VERY scary knowing the effect it had on him this time, i cant help but wonder if the next update will be as good :( .
Lets start with the positives - Daniel has now clocked up 5 rounds of chemo, the 5th of which was 2 weeks ago and he survived it (which in itself is an achievement!) not only that but he is doing well i wont use my word "amazing" because this round has been tough and as i write he has a bug again in his central line, this time he is alot more tired and appears yellow/grey in colour. The diahorrea continues into its 6th month as does the vommiting and in himself he has good days and bad. Today has been a good day and despite his blood pressure dropping and constantly needing blood and platelets he has managed a little stint in hospital school where he painted a "bear mask" and had a small go on their computer. Mostly he is just watching DVD's and TV and lying in bed recouperating. Michael mentioned to the docs how this seemed to be taking it toll on him and his reply "consider this round Major surgery" in comparrision to the other chemo this is tough stuff.
He is sceduled for another biopsy tomorrow, which they are expecting his bone marrow to be "empty" as it is yet to regnerate after chemo, if this is the case they will repeat it next week, if it has any cells (good or bad) they will crack on with another round of chemo next week in order to prepare him for transplant. Originally they did say the last one was "it" but his little body has again proved them wrong and they are pushing on with more. Although this is good news, it is, at the same time VERY scary knowing the effect it had on him this time, i cant help but wonder if the next update will be as good :( .
posted by Liz at 3:30 pm
1 Comments:
Thinking of Daniel with all my heart, Liz, and sending all my best wishes out to him.
Sven from LF
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