Happy Kasai Anniversary Daniel!

Well yesterday was Daniel's 2nd Kasai anniversary - that is, it is 2 years since he had the operation that has saved his life. Its weird though, i always have mixed emotions at this time, on one hand Daniel is doing really good (and believe me when I say its taken me a long time to actually be able to say that)and looks well, is doing GREAT at nursery and to be honest looks like any "normal child". On the other hand I cannot understand why? Why, that is it happened to us? Why he has a liver disease? Why? So many unanswered questions. I hope as Daniel grows up he understands our frustration at his disease - I hope he knows or realises how we did not choose this path for our son. It feels wrong that he WILL have to cope with being the only one who cant drink on a night out with his mates or he is the one who has to remember to take his meds when all the other lads of the same age are worrying about girls..... Oooh i get so mad that my son will have to face this.
But his kasai anniversary is one to celebrate and think that thank God he had this operation and without he would not be here, a friend of mine said that they couldnt believe that in 2 years there child (also with BA) had not been admitted and I'm sitting reading it, thinking, yeah thats really good and than WHAM i realise that Daniel too has not been admitted as an inpatient since his Kasai 2 years ago and I thank God for that - I can say we are lucky, he is lucky and blessed that yeah he may have things to face in his future, but with the help of the kasai at least he has that very thing - A FUTURE TO FACE.
xxx

Children's Liver Disease Conference

Well you will be pleased to know that a lot of fun was had on Saturday 7th October as we all headed to Birmingham for the annual CLDF Conference! Olivia was packed off to Drayton Manor Theme park for the day and Daniel in the Creche as myself and Michael wondered around the conferance with me looking for people I might just "know"!
I did meet those people all my online friends from our site "Liver Families", I would of posted more Photos but unfortunately we had dropped the camera several times and the photos are of really poor quality....This photo is of myself and Daniel with Alex and her daughter Mariella, it was lovely to meet the people in person I had been talking with for nearly a year now (Alex's daughter has BA the same as Daniel) It was nice meeting everyone - Sharon with Hannah, Nish and Kian, Danielle & ethan etc. The whole world seems a smaller place when you meet people going through the same as you, those guys just "get it".
Anyway a lot of information was given on Biliary Atresia, inc. 3 talks done by people living with the disease, one of which was a 31 year old woman with 3 kids of her own! WOW - only 1 thing to add, in my opinion (and that of Daniel's Doc, Dr Mclean who also attended) she was the exception to the rule and is doing very well indeed.
Hopefully i will write up some more notes about all the info. on Saturday far to much to write here, but if you do want any other info I can always email it to anyone..
We all had a great day and I must say "thanks" to those who organised it. It is always a good annual event and we will continue to attend hopefully for years to come!
The other news is we booked a holiday to "Salou" the other week, so next year on 18th May we fly to spain and stay in a 4 star hotel, half board! Boy i cant wait - i just love to book holidays then i have something lovely to look forward to - have to stop talking about it now , im getting excited already :-)